XXXI Mostra Unisinos de Iniciação Científica e Tecnológica

397 XXXI MOSTRA UNISINOS DE INICIAÇÃO CIENTÍFICA E TECNOLÓGICA De 28/10/2024 a 01/11/2024 Unisinos São Leopoldo LOUGHLIN, Michael. Ethics, management and mythology: The philosophy and politics of contemporary Health Service Management. Radcliffe Publishing, 2001. MENDELL, J. R. et al. Single-Dose Gene-Replacement Therapy for Spinal Muscular Atrophy. The New England Journal of Medicine 377, 18, 2017, p. 1713-1722 MERCURY, E., BARANELLO, G., KIRSCHNER, J., et al. Diagnosis and management of spinal muscular atrophy: Part 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care. Neuromuscul Disord;28(2), 2018:103-115. PETERS, M., Godfrey, C., McINERNEY, P., MUNN, Z., TRICCO, A. C., & KHALIL, H. Chapter 11: Scoping reviews. In E. AROMATARIS & Z. MUNN (Eds.), JBI Reviewer’s Manual. Joanna Briggs Institute, 2020. https://reviewersmanual.joannabriggs.org/ PRODANOV, Cleber Cristiano; FREITAS, Ernani Cesar. Metodologia do trabalho científico: Métodos e técnicas da pesquisa e do trabalho acadêmico. Novo Hamburgo: Universidade Feevale, 2013. ROUAULT, F., CHRISTIE-BROWN, V., BROEKGAARDEN, R., et al. The role of palliative care in advanced motor neurone disease: Current status and future directions. Lancet Neurol.17(1), 2018:74-83. TONELLI, Mark R.; SULLIVAN, Mark D. Person-centered shared decision-making. Journal of Evaluation in Clinical Practice. V.25, n.6, 2019, p. 1057-1062. TRICCO, A. C. et al. PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, v. 169, n. 7, 2018. WILKINSON, Dominic. Death or Disability: The ‘Carmentis Machine’ and decision-making for critically ill children. Oxford University Press (2013) WIKINSON, Dominic & SAVULESCU, Julian. Hard lessons: Learning from the Charlie Gard case. J Med Ethics 44, 2018, p. 438–442

RkJQdWJsaXNoZXIy MjEzNzYz